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Community Engagement in Clinical Research: Indigenous People

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Objectives
Summarize the background of historical treaties and abuses that inform current practices and policies for the tribal research review process.
Explain community engagement in research and the review process.
Provide examples of the tribal and community review processes.

References
Indian Health Service (IHS)
National Congress of American Indians (NCAI)
Foote, International Journal Circumpolar Health, 2015
Singleton, Indoor Air, 2015
Waianae Coast Comprehensive Health

Speaker(s): Rosalyn Singleton, MD, MPH & May Okihiro, MD, MS

Speaker(s) Bio
Rosalyn Singleton, MD, MPH
Dr. Singleton graduated from Northwestern University Medical School, Chicago in 1982, and completed a Pediatric residency at Children’s Memorial Hospital, Chicago, and an MPH from Loma Linda University. She worked as a pediatrician in the 1980s in a Navajo hospital.  Since 1988 Ros has worked as a clinical pediatrician, immunization consultant and researcher for Alaska Native Tribal Health Consortium (ANTHC).  In 2015 Rosalyn worked for the State of Alaska on vaccine financing solutions.  From 1988 to present she has been a guest researcher with Arctic Investigations Program – CDC, working on clinical studies with Alaska Native people related to vaccine-preventable infections, respiratory infections, vitamin D deficiency, indoor air quality, and bronchiectasis.

May Okihiro, MD, MS
Dr. Okihiro is a pediatrician at the Wai’anae Coast Comprehensive Health Center and the director of the Hawai’i Initiative for Childhood Obesity Research and Education (HICORE) and the chair for Hawai’i State Nutrition and Physical Activity Coalition Healthcare Taskforce.  Her clinical research is in childhood obesity and early metabolic risk.  Dr. Okihiro is also the PI of a 3-year project to implement and evaluate policies and processes to address childhood obesity in pediatric clinics. She attended the University of Hawaii John A. Burns School of Medicine and completed her pediatric residency at the University of Washington. After residency, she spent three years at the UH Pacific Basin Medical Officers Training Program in Micronesia and two years as an instructor at the Fiji School of Medicine before returning to Hawaii.

DCOC Contact Information
Catrice Banks-Johnson
Email: crbanksjohnson@uams.edu

DeAnn Hubberd
Email: DEHubberd@uams.edu

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